The blood red shamrock pin-badge is now available from the Haemochromatosis UK shop. The quality metal enamel badge can be used to increase awareness of the haemochromatosis cause. Read more
A major Haemochromatosis UK event is taking place on the 7th October 2026. Leading experts in the field will cover themes of genetics, treatment and latest research for the benefit of the patient community. Book now to secure your place. Read more
Our Office and Helpline will be closed over the Easter Bank Holiday Weekend. Read more
Help us tell the story of haemochromatosis in Wales. Get in touch to help us raise public awarness through sharing your experience of how this condition has impacted you life or that of loved ones. Read more
The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK! Read more
Could you be up to the challenge of running The TCS London Marathon in 2027 for Haemochromatosis UK? UPDATE - BOTH PLACES NOW ALLOCATED. Read more
Our Iron Nurse, Victoria was in the North East meeting people affected in Newcastle and Whitley Bay. Read more
Evrah Rose, poet, author and spoken word champion has agreed to help Haemochromatosis UK tell the story of people in Wales affected by haemochromatosis. Read more
It has come to our attention that not everyone in our selected postcodes has received a leaflet through their letterbox as they should have. Read more
In response to the latest study funded by Haemochromatosis UK, the charity is naming 10 priority areas for awareness, clinician education and family support while continung to work across all of the UK. Read more
New research funded by Haemochromatosis UK and led by Professor Jim Wilson at the University of Edinburgh has mapped genetic hotspots for haemochromatosis across the UK and Ireland. Read more
Congratulations to Alma Morse on her British Citizen Award! Read more
The team from Haemochromatosis UK met recently with NHS BT to discuss future collaboration, to encourage more of our community to manage the condition through blood donation. Read more
Free genetic haemochromatosis screening — NI’s most common inherited condition — offered in selected Northern Ireland postcodes from 16 Jan 2026 Read more
We are announcing changes being made from 1st January 2026 to our membership offer, test kit pricing and shop prices. Read more
Haemochromatosis UK issues this formal notice regarding the MyIron app and Ask Alice platforms. Read more
On November 4th the European Alliance Of Associations for Rheumatology (EULAR) 2025 Classification Criteria for Haemochromatosis Arthropathy were published in the Annals of the Rheumatic Diseases. Read more
The established clinical importance of C282Y homozygosity in genetic haemochromatosis is now joined by growing evidence that C282Y/H63D compound heterozygosity can also lead to significant iron overload and reduced quality of life for some patients. Read more
The London Landmarks Half Marathon is not as famous as the world renowned London Marathon. But it is more relaxed, with less runners and importantly only half the distance. ALL PLACES NOW TAKEN Read more
We are keen to reach healthcare professionals in Hampshire and the Isle of Wight and surrounding counties with information about genetic haemochromatosis. Read more
Three venues across the west coast of Wales have been organised for Iron Brew get-togethers for people affected by Genetic Haemochromatosis Read more
Winner of the 2025 Janet Fernau Award, Professor Lewis Gough (lead researcher), Professor Kiara Lewis (co-investigator) present a mixed methods investigation into the experiences of patients with genetic haemochromatosis during and following venesection treatment. Read more
A short summary of the findings of the research study conducted between June-August 2024 by Craven-Smith et al., (2025) [1]. Read more
We welcome our newly appointed Interim CEO, Jonathan Jelley MBE JP. Read more