We are sorry to inform you that we have experienced a breach of security that has resulted in the unauthorised access to your personal data. Read more
Research by Maureen Ng'etich. Read more
We are writing as the Trustees of Haemochromatosis UK to provide reassurance regarding the continued stability and sound governance of the charity. Read more
Reflecting on a powerful week that brought communities together to raise awareness about haemochromatosis and its impact. Read more
We are searching for a graphic designer to design two booklets, showcasing our latest research into quality of life of those affected by genetic haemochromatosis and care for haemochromatosis patients in Lincolnshire. Read more
Some of you may have noticed some technical difficulties across our MyIron App, and Ask Alice ai chat. Sadly, they are a little poorly right now, and not working as they should! Read more
Protecting people and safeguarding responsibilities are priorities for Haemochromatosis UK (HUK). The charity supports and works with a wide range of people throughout the UK and we recognise that some people we are in contact with may be at risk of harm. The charity supports the rights of people to live in safety, free from abuse and neglect. We aim to provide a safe and trusted environment that safeguards everyone, including beneficiaries, employees and volunteers. This policy explains how. Read more
Summary of what was discussed at the first 'Pass it On' meeting on 8th October 2025, and a short survey where you can have your own input on the design of a brand new resource pack for families. Read more
The 2024 Annual Report and Financial Statement from Haemochromatosis UK Read more
Meet our Finance Trustee Read more
Funded by The National Lottery Community Fund, The Pass it on Project will engage with 1,250 families directly over five years. Read more
Meet our Chair of Trustees Read more
We are in awe of all of your entries for our 'Iron In The Landscape' Photography Challenge- so much so we have created a virtual gallery to display some of them! Read more
What are you doing to help raise awareness for this years awareness week? Read more
An Ode to HUK Volunteers- a poem written by #TeamIronOverload to show appreciation for our wonderful team of volunteers during #VolunteersWeek2025. Read more
Volunteer with us as an Exhibition Host for the Belfast launch of the We Are Overloaded exhibition. Read more
The APPG met on 5th February 2025 to consider a presentation by FTI Consulting LLP on HUK's latest report : "The Economic Impact of Screening for GH in Northern Ireland". Read more
Our latest report with FTI Consulting LLP demonstrates that there is a clear economic case for routine population-based GH screening in Northern Ireland Read more
Although some existing literature suggests that HFE carriers do not load iron, this case demonstrates the importance of regularly monitoring TSAT and SF levels in C282Y carriers, as iron overload can be unpredictable due to various genetic and environmental factors. Read more
For what we believe to be the first time, we have quantified the prevalence of genetic haemochromatosis in the Northern Irish population. Read more
Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis. Read more
A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now. Read more
The All-Party Parliamentary Group on Genetic Haemochromatosis met at Westminster on 12th November 2024. This was the first meeting following the call of the 2024 General Election, at which all APPGs are dissolved. Read more
Vita Vibes is a food supplement developed by Haemochromatosis UK, suitable for people with haemochromatosis and those following a low iron diet. Read more