Iron Overload debated in parliament , in the presence of health minister Mrs Seema Kennedy MP and led by Mark Pawsey MP, Chair of the APPG on Genetic Haemochromatosis. Read more
Mark Pawsey MP has secured a one-hour Westminster Hall debate in parliament. Read more
"Genetic Haemochromatosis"
Even the name can be tricky to say – which is why it’s often called GH. Finding the right words to explain GH to family, friends and employers can be difficult. We hope these brief guides will help you to explain GH when you need to.
A discussion about Spoon Theory and how it relates to Haemochromatosis. Read more
People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace. Read more
When you have GH it’s important to tell your adult family members as they might be at risk of iron overload. This includes your biological parents, sisters, brothers, their children, and your own children. Read more
Talking with young people about haemochromatosis requires care and a thoughtful approach. We explain some of the considerations before you do. Read more
Myth Buster - the truth is that haemochromatosis patients can indeed donate blood. Read more