Newly Diagnosed? Our Iron Overload Buddies are here for you! Read more
Our latest report with FTI Consulting LLP demonstrates that there is a clear economic case for routine population-based GH screening in Northern Ireland Read more
This study, published in November 2022, reveals that people with genetic haemochromatosis are at greater risk of suffering with poor mental health than the general population. Read more
Our latest report reveals the true costs to the NHS of the burden of ill-health arising from genetic haemochromatosis. Read more
We provide a wide range of publications, covering aspects of genetic haemochromatosis.
Many of these information & advice guides are included in every membership pack as just one of the benefits of membership. Join us today and receive your own printed copies.
Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards. Read more
Everyone deserves great NHS care. But if something goes wrong or isn’t working for you, what can you do? Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, also known as type 3 or TFR2-related GH. Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, called Ferroportin Disease. Read more
This guide, produced by the employment law team at Gowling WLG (UK) LLP, provides advice to employers whose staff have genetic haemochromatosis. Read more
This guide for parents and carers explains the rare type 2 variant of genetic haemochromatosis, which typically affects young people under 25 years old. Read more
"I’ve got diabetes and haemochromatosis - what does this mean for me?" Read more
This study, undertaken 2022, demonstrates that screening for genetic haemochromatosis neither attracts the worried well nor causes anxiety. Read more
In this report, we discuss the results of a survey on genetic haemochromatosis treatment approaches in the UK. Read more
This essential guide, produced by the employment law team at Gowling WLG (UK) LLP, explains your employment rights if you have genetic haemochromatosis. Read more
It’s possible to develop vitamin deficiency whilst undergoing venesection treatment for genetic haemochromatosis. Our leaflet explains more. Read more
A guide for prospective parents who have genetic haemochromatosis and intend to become, or are currently, pregnant. Read more
Leaflets discussing the issues of brain fog, mood swings, depression and anxiety that people diagnosed with genetic haemochromatosis frequently report and where to get help. Read more
Haemochromatosis Genynnol - Anhwylder Gorlwyth Haearn (in Welsh, published March & April 2021) Read more
Resources for children and young people affected by genetic haemochromatosis. Published March 2021. Read more
This 22-page report was commissioned in response to the UK National Screening Committee consultation on genetic screening for GH in adults. Published February 2021. Read more
This detailed guide for General Practitioners and primary care practitioners covers a wide-range of issues from diagnosis, genetic testing, ongoing care pathways and more. Read more
This guide for nurses & healthcare practitioners is a companion to our Venesection Best Practice Guidance (endorsed by the Royal College of Nursing). Read more
Skin conditions can occur when you have genetic haemochromatosis . This guide explains the symptoms and what can be done to help. Read more
Blood test results can be baffling - our guide helps to explain what each test is about. Read more