Genetic haemochromatosis is not rare, but is rarely diagnosed. This is a lifelong condition with no cure. If left untreated GH will take lives due to iron overload and organ failure.
My son was diagnosed with Haemochromatosis 5years ago. My husband and I are carriers.
Raising money for Haemochromatosis UK - to support those who are close to me.
I'm raising money and awareness for the patients
Raising funds for Haemochromatosis UK by completing the 'Mighty Stride' (23 miles) at Glasgow Kiltwalk 2025.
More research and awareness is needed to save lives!
Haemochromatosis is a condition where you absorb too much iron into your blood stream affecting up to 1 in 10 people. It is often asymptomatic but if undiagnosed can lead to fatigue, joint pain, liver failure, mental health issues and ultimately can be fatal. I am running to raise recognition of the disease and where possible to raise funds for Haemochromatosis to continue their work in better understanding the disaese, raising awareness and treating patients.
I've set up this page in memory of my Nick. I have been overwhelmed by this small charity.
I'm raising money and awareness of haemochromatosis
Its a genetic condition that people and their families need to be aware of, as if untreated or undiagnosed it can sneak up on you. It affects my family. Who wouldn't do everything for family?
As a family we wanted to raise some awareness of this awful condition that contributed to the loss of someone very special to us.
In loving memory of Farrell Tansey
To raise awareness and help find a cure for HH
As members of my family have haemochromatosis and one son currently going through venesection I want to do what I can to make the wider community aware of haemochromatosis and support where possible.
We all know that a lack of awareness and education about haemochromatosis is the biggest problem we face. That's especially true in Northern Ireland, where as many as 1 in 10 people are at risk of iron overload.
Ken Duncan - our Dad - was an amazing man who was loved by his friends and family. Ken was passionate about increasing awareness of Haemochromatosis, this 'silent killer' which ultimately took his life. Please give generously in memory of Ken.
On October the 1st I will be running the Loch Ness marathon and want to use this as an opportunity to fundraise for a cause that has a lot of local significance to me. I sadly lost my Auntie Bronwen 'Bonnie' Stark/Mackay to complications of haemochromatosis in 2020. Running this race so close to where she lived - I would like to help raise money to aid funds for the treatment and raise awareness of this condition.
I am fundraising for Haemochromotosis UK to support their work in raising awareness of Haemochromotosis and the advice to those with the condition