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  • APPG on GH : February 2025

    APPG on GH : February 2025

    The APPG met on 5th February 2025 to consider a presentation by FTI Consulting LLP on HUK's latest report : "The Economic Impact of Screening for GH in Northern Ireland". Read more

  • APPG on GH : April 2023

    APPG on GH : April 2023

    The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 19th April. Read more

  • APPG on GH AGM 2021/22

    APPG on GH AGM 2021/22

    The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held on Tuesday 15th March at 3pm. Read more

  • APPG on GH : February 2021

    APPG on GH : February 2021

    The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm. Read more

  • APPG on GH : February 2025
  • APPG on GH : April 2023
  • APPG on GH AGM 2021/22
  • APPG on GH : February 2021
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  1. Home
  2. All-Party Parliamentary Group

All-Party Parliamentary Group

What is the APPG?

 All-Party Parliamentary Groups (APPGs) are informal cross-party groups. They have no official status within Parliament but can, however, be very influential in bringing matters to the attention of parliament and ministers, and encouraging action by other bodies. They are run by and for Members of the Commons and Lords, though many choose to involve individuals and organisations from outside Parliament in their administration and activities.

This APPG for Genetic Haemochromatosis (Iron Overload) was created in January 2019 following a report into the impact of iron overload commissioned and published by the charity Haemochromatosis UK. The report was launched at an event at The House of Commons in October 2018 and stimulated the interest of many MPs.

Download the report

Who are the Chair and Vice-Chair?

The APPG on Genetic Haemochromatosis is chaired by the Rt Hon Sir John Hayes CBE MP (Conservative, South Holland & The Deepings). The Vice-Chair is James Wild MP (Conservative, North West Norfolk). Officers include Torcuil Crichton MP (Labour, Na h-Eileanan an Iar) and Baroness Evans of Bowes Park (Conservative).

Who are the APPG Members?

The group is truly cross-party with representatives from both houses, across a broad range of political parties. In 2025 there were 26 members. More members are welcome to join by contacting the APPG Secretariat via [email protected].

What are the APPG's priorities and what is its remit?

The APPG has agreed its remit (terms of reference) and these can be viewed here. Priorities for the group will be agreed from meeting to meeting and minutes of the meetings are available below. The formal APPG register is available here.

Download the APPG Terms of Reference

APPG on GH : February 2025

APPG on GH : February 2025

The APPG met on 5th February 2025 to consider a presentation by FTI Consulting LLP on HUK's latest report : "The Economic Impact of Screening for GH in Northern Ireland". Read more

Published: 21st February, 2025

Author: Neil McClements

APPG on GH : November 2024

APPG on GH : November 2024

The All-Party Parliamentary Group on Genetic Haemochromatosis met at Westminster on 12th November 2024. This was the first meeting following the call of the 2024 General Election, at which all APPGs are dissolved. Read more

Published: 7th January, 2025

Author: Neil McClements

APPG on GH : April 2023

APPG on GH : April 2023

The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 19th April. Read more

Published: 31st January, 2023

Updated: 9th May, 2023

Author: Neil McClements

APPG on GH : October 2022

APPG on GH : October 2022

The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held at Westminster on Wednesday 26th October 2022. Read more

Published: 25th July, 2022

Updated: 31st January, 2023

Author: Neil McClements

APPG on GH AGM 2021/22

APPG on GH AGM 2021/22

The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held on Tuesday 15th March at 3pm. Read more

Published: 22nd February, 2022

Updated: 24th March, 2022

Author: Neil McClements

APPG on GH : Annual General Meeting 2020/21

APPG on GH : Annual General Meeting 2020/21

The Annual General Meeting of the All-Party Parliamentary Group for Genetic Haemochromatosis meeting was held online via Zoom webinar on Tuesday 16th March 2021. Read more

Published: 16th March, 2021

Updated: 17th March, 2021

Author: Neil McClements

APPG on GH : February 2021

APPG on GH : February 2021

The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm. Read more

Published: 22nd January, 2021

Updated: 3rd March, 2021

Author: Neil McClements

APPG - Wednesday 2nd December 2020 Minutes

APPG - Wednesday 2nd December 2020 Minutes

The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here. Read more

Published: 21st December, 2020

Updated: 28th January, 2021

Author: Elizabeth Lang

End of Year APPG : December 2020

End of Year APPG : December 2020

The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm. Read more

Published: 12th November, 2020

Author: Neil McClements

Meeting of the APPG for Genetic Haemochromatosis  -2020

Meeting of the APPG for Genetic Haemochromatosis -2020

Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP. Read more

Published: 12th February, 2020

Updated: 21st February, 2020

Author: Vicki Lunn

APPG Meeting Dates - 2020

APPG Meeting Dates - 2020

The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here. Read more

Published: 29th January, 2020

Updated: 17th February, 2020

Author: Neil McClements

Minutes of the third meeting of the APPG for Genetic Haemochromatosis

Minutes of the third meeting of the APPG for Genetic Haemochromatosis

Minutes of the third meeting of the APPG for Genetic Haemochromatosis on 30th October 2019. Read more

Published: 5th November, 2019

Updated: 11th January, 2021

Author: Vicki Lunn

Minutes of the second meeting of the APPG for Genetic Haemochromatosis

Minutes of the second meeting of the APPG for Genetic Haemochromatosis

Minutes of the second meeting of the APPG for Genetic Haemochromatosis on 15th May 2019. Read more

Published: 10th June, 2019

Author: Vicki Lunn

Topics for discussion and action

Topics for discussion and action

The upcoming meeting of the APPG for Genetic Haemochromatosis on 15 May will consider a paper presented by Haemochromatosis UK on clinical guidelines. Read more

Published: 1st May, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Haemochromatosis on Radio 4

Haemochromatosis on Radio 4

Genetic haemochromatosis was featured on BBC Radio 4’s “Inside Heath” in February. Read more

Published: 19th February, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Minutes of the first meeting of the APPG for Genetic Haemochromatosis

Minutes of the first meeting of the APPG for Genetic Haemochromatosis

The first APPG for Genetic Haemochromatosis meeting held at Portcullis House in London on 16th January 2019. Read more

Published: 23rd January, 2019

Author: Vicki Lunn

“Buzzy” inaugural meeting

“Buzzy” inaugural meeting

The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) took place on Wednesday 16 January 2019 at Portcullis House. Read more

Published: 18th January, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Mark Pawsey MP offers to Chair APPG for GH

Mark Pawsey MP offers to Chair APPG for GH

Mr Mark Pawsey, MP for Rugby where Haemochromatosis UK has its offices, has offered to chair the new All Party Parliamentary Group for Genetic Haemochromatosis. Read more

Published: 7th January, 2019

Updated: 30th January, 2020

Author: Vicki Lunn

Inaugural Meeting Scheduled

Inaugural Meeting Scheduled

The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) will take place on Wednesday 16 January 2019 at Portcullis House, Westminster, at 14:30. Read more

Published: 21st December, 2018

Updated: 30th January, 2020

Author: Vicki Lunn

MPs express support for new APPG

MPs express support for new APPG

A number of MPs have agreed to take part in a proposed new All Party Parliamentary Group (APPG). Read more

Published: 30th November, 2018

Updated: 30th January, 2020

Author: Vicki Lunn

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Latest

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    The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!

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  • Order a Test Kit Today!

    Order a Test Kit Today!

    A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

  • Breakfast Cereals and their Iron Content

    A rough guide to the Iron content in cereals

  • Treatment & Care

    Treatment & Care

    With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.

  • Clinical Guidelines for Genetic Haemochromatosis

    Clinical Guidelines for Genetic Haemochromatosis

    Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.

  • HFE (Type 1) Genetic Haemochromatosis

    HFE (Type 1) Genetic Haemochromatosis

    Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

  • Employers' guide to haemochromatosis

    Employers' guide to haemochromatosis

    People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

  • Haemochromatosis Carriers

    Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.

  • H63D carrier (also known as “H63D heterozygous”)

    If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.

  • Help lines

    Help lines

    Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

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